the patient's voice at the core of
health care decisions
What is the PROxy Network?
The PROxy Network is an innovative research platform designed to better understand a disease or treatment through data coming directly from patients. These data are important because they allow a better understanding of the disease or the treatment from the patient’s perspective.
Participants recruitment is ensured by an established network of community pharmacies, patients’ associations, or healthcare professionals. All studies in the PROxy studies meet the highest standard for confidentiality and data security. Each study is approved by an independent ethics committee.
How it works?
You have been approached to participate in a PROxy study based on your disease or your treatment.
Read the consent form and, if you are satisfied with the study conditions, sign the consent form. If you have any question, do not hesitate to contact us.
Complete the questionnaires associated with your study.
Your answers to the questionnaires will be compiled with those of the other study participants.
Compensation for this study will be mailed to you at the scheduled time as indicated in the consent form.
The data collected will help to better understand the impact of your disease or your treatment on different aspects of your daily life. Most of the questions are either in the form of a choice based “on a scale of 0 to 10” or answered with a “yes or no”, with answers conveying how you felt over the past few days. There is no right or wrong answer. All your personal information will remain private and secure.
Signs and Symptoms
Signs and symptoms of a disease (e.g. fatigue, nausea, pain)
Physical function (e.g. sleep, mobility, sexuality), psychological and emotional function (e.g. anger, distress, self-esteem)
Activities of Daily Living
Ability to conduct daily activities (e.g. eating, dressing, showering)
Work Productivity Loss
Missed work days due to disease (absenteeism) and less productive periods during working hours (presenteeism)
Quality of Life and Preference-Based Measures
Components of psychological, physical, social and material factors to assess the well-being of an individual
Healthcare Resource Utilization
Use of healthcare resources, such as physician visits, emergency room visits, hospitalizations and medication
Point of view regarding experience and level of satisfaction with the treatment
Point of view regarding the impact of the disease or treatment on their relative
Why Participate in PROxy Network Study?
Frequently Asked Questions
The PROxy Network pays particular attention to personal information to ensure that it remains completely confidential. Under no circumstances will we share your name, mailing address, email address or phone number. Access to this information is only granted to authorized personnel of the PROxy Network.
The number of questionnaires and the frequency to which they are completed may differ from study to study. Completing the questionnaires of any given study should require a total time ranging between 15 and 30 minutes, depending on the study you are participating in.
A check will be mailed to you when the questionnaires are completed. Please contact us if you have not received a check within 4 weeks of completing the questionnaires.
Your participation in this network does not put you at any medical risk.
Your participation in this network is voluntary. You are therefore free to refuse to participate. You can also withdraw from a study at any time without giving a reason, by informing the PROxy Network team. Your decision not to participate in a study or to withdraw from a study will have no impact on the quality of care and services to which you are entitled.