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the patient's voice at the core of
health care decisions

What is the PROxy Network?

The PROxy Network is an innovative research platform designed to better understand a disease or treatment through data coming directly from patients. These data are important because they allow a better understanding of the disease or the treatment from the patient’s perspective.

Participants recruitment is ensured by an established network of community pharmacies, patients’ associations, or healthcare professionals. All studies in the PROxy studies meet the highest standard for confidentiality and data security. Each study is approved by an independent ethics committee.

How it works?

You have been approached to participate in a PROxy study based on your disease or your treatment.

Register online by clicking on the link Participant Portal and then enter the study number provided to you.

Read the consent form and, if you are satisfied with the study conditions, sign the consent form. If you have any question, do not hesitate to contact us.

Complete the questionnaires associated with your study.

Your answers to the questionnaires will be compiled with those of the other study participants.

Compensation for this study will be mailed to you at the scheduled time as indicated in the consent form.

Data Collected

The data collected will help to better understand the impact of your disease or your treatment on different aspects of your daily life. Most of the questions are either in the form of a choice based “on a scale of 0 to 10” or answered with a “yes or no”, with answers conveying how you felt over the past few days. There is no right or wrong answer. All your personal information will remain private and secure.

Signs and Symptoms

Signs and symptoms of a disease (e.g. fatigue, nausea, pain)


Physical function (e.g. sleep, mobility, sexuality), psychological and emotional function (e.g. anger, distress, self-esteem)

Activities of Daily Living

Ability to conduct daily activities (e.g. eating, dressing, showering)

Work Productivity Loss

Missed work days due to disease (absenteeism) and less productive periods during working hours (presenteeism)

Quality of Life and Preference-Based Measures

Components of psychological, physical, social and material factors to assess the well-being of an individual

Healthcare Resource Utilization

Use of healthcare resources, such as physician visits, emergency room visits, hospitalizations and medication

Treatment Satisfaction

Point of view regarding experience and level of satisfaction with the treatment

Caregiver Burden

Point of view regarding the impact of the disease or treatment on their relative

Take Part in a Study by the PROxy Network

Why Participate in PROxy Network Study?

Contribute to research that aims to improve patient health
Give your point of view on your disease or treatment
Participate in initiatives that aim to facilitate access to better treatments
Receive financial compensation

Frequently Asked Questions

The PROxy Network pays particular attention to personal information to ensure that it remains completely confidential. Under no circumstances will we share your name, mailing address, email address or phone number. Access to this information is only granted to authorized personnel of the PROxy Network.

The number of questionnaires and the frequency to which they are completed may differ from study to study. Completing the questionnaires of any given study should require a total time ranging between 15 and 30 minutes, depending on the study you are participating in.

A check will be mailed to you when the questionnaires are completed. Please contact us if you have not received a check within 4 weeks of completing the questionnaires.

Your participation in this network does not put you at any medical risk.

Your participation in this network is voluntary. You are therefore free to refuse to participate. You can also withdraw from a study at any time without giving a reason, by informing the PROxy Network team. Your decision not to participate in a study or to withdraw from a study will have no impact on the quality of care and services to which you are entitled.

If you have any other questions, you are always welcome to contact us!

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